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What to track in a symptom diary Timing, duration, activity when it starts, affected fingers, neck/shoulder positions, associated symptoms (chest pain, shortness of breath), and response to rest or meds
Why Source Matters This is where most people make mistakes
'Hugely expensive' Irene Roberts, professor of paediatric haematology, at the University of Oxford, said: "Reducing or stopping transfusions is important for patients with thalassaemia because they are a double-edged sword- essential for survival but also responsible for life-changing, life-shortening side-effects
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